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Response to “Frameworks are pretty on paper but often don’t fit reality”

Journal of Perinatology volume 36, page 1140 (2016)Cite this article

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A Corrigendum to this article was published on 26 May 2017

We would like to thank Schibli and D’Angiulli for their comments.1 Given the prescribed word count, it was not possible to clarify all the details needed to understand the approach we propose along with its challenges and opportunities.

In terms of outcome, survival is easy to define; disability less so. We used the definitions from the EPICure cohort2 for neurodevelopmental disability as they take into account motor, cognitive, visual and auditory impairments that can reach levels likely to be challenging for children and their parents. We advise clinicians that parents receiving support for their decision should be provided with real-life examples of what the various disabilities could entail.

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  1. Department of Pediatrics, Children’s Hospital of Eastern Ontario, Ottawa, ON, Canada

    B Lemyre

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  1. B Lemyre
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Correspondence to B Lemyre.

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Lemyre, B. Response to “Frameworks are pretty on paper but often don’t fit reality”. J Perinatol 36, 1140 (2016). https://doi.org/10.1038/jp.2016.180

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