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Prevalence of hospital websites with Post-Intensive Care Syndrome-pediatrics (PICS-p) information

Pediatric Research volume 95, pages 590–592 (2024)Cite this article

Survival after critical illness and Pediatric Intensive Care Unit (PICU) stays has increased substantially and lasting impacts on survivors and parents is increasingly identified.1,2,3 The Post-Intensive Care Syndrome—Pediatrics (PICS-p) framework describes the physical, cognitive, emotional, and social health sequelae following critical illness in children.3 This framework places parents and their experiences along side their child’s experience.4 Despite increasing provider information about PICS-p, little is known about the availability of information for parents and caregivers about PICS-p.

Up to 98% of parents will turn to the Internet for information about their child’s health and most parents will use this information to ask more questions of their health care providers.5,6 Furthermore, nearly 20% will change a health care decision based on what they find on the Internet.7 While social media has a growing influence on parental health care decisions, nearly 75% of parents cite hospital-based websites as the most trusted source of disease information on the Internet.6

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Fig. 1: Distribution of educational materials on Children’s Hospital Websites.

Data availability

The datasets generated during and/or analysed during the current study are available from the corresponding author upon reasonable request.

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Authors and Affiliations

  1. Department of Pediatrics, Pediatric Critical Care Medicine, University of Michigan Medical School, Ann Arbor, MI, USA

    Kristen A. Smith, Erin F. Carlton & Stephen M. Gorga

  2. Susan B. Meister Child Health Evaluation and Research (CHEAR) Center, University of Michigan, Ann Arbor, MI, USA

    Erin F. Carlton

  3. Department of Pediatrics, Pediatric Critical Care Medicine, Jacobs School of Medicine and Biomedical Sciences, University at Buffalo, Buffalo, NY, USA

    Erica Rider

  4. VA Center for Clinical Management Research, Ann Arbor, MI, USA

    Taylor Whittington

Authors
  1. Kristen A. Smith
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  2. Erin F. Carlton
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  3. Erica Rider
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  4. Taylor Whittington
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  5. Stephen M. Gorga
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Contributions

S.M.G. and E.F.C. participated in the study design. All authors participated in data analysis and interpretation and contributed important intellectual content during manuscript drafting and revision. All authors have read and approved the final manuscript.

Corresponding author

Correspondence to Stephen M. Gorga.

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The authors declare no competing interests.

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This research was approved by the Institutional Review Board at the University of Michigan (HUM00214815). Written informed consent was applicable for patients.

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Smith, K.A., Carlton, E.F., Rider, E. et al. Prevalence of hospital websites with Post-Intensive Care Syndrome-pediatrics (PICS-p) information. Pediatr Res 95, 590–592 (2024). https://doi.org/10.1038/s41390-023-02867-w

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  • DOI: https://doi.org/10.1038/s41390-023-02867-w

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